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Chewe Mupenzeni’s Story

By Goodson

Chewe Mupenzeni Lewis, an albino boy with low vision, was born on 8th August 2007 in Kasma district of the Northern Province of Zambia. He is the third born child (and the only albino) in the family of 6, where they are five boys and one girl. Chewe Lewis has low vision and he cannot see clearly from a far distance, due to albinism. Most of his family members from the father’s side accepted the child but other community members of Kasama district had mixed feelings about the birth of an albino child in the community. The people were fearful that bad luck would come in the village, because an albino lived among them. It is because of this superstition, that albino community members are shunned and isolated for fear they will pass on their albinism to present and future members of the village.

As result of this situation, his parents sought guidance on where the child could learn and stay safe without stigmatization. At the age of seven the Sisters of the Child Jesus helped his parents by giving them information on where Chewe could go and learn, which was St. Odilia special school for the visually impaired in Mporokosa, northern Zambia. Chewe is happy there as he is now protected and more secure. In the past he was isolated from other children in the community because of superstitions concerning albinos.

Seven years was very young age to leave his home but Chewe started learning how to write and read Braille and became very skilled. Fortunately, he did very well in all the subjects and moved from pre-school to grade 7 on a faster pace so that in 2020 he wrote his grade 7 national examination and passed well.

 Currently, he is in grade 9 preparing to write his grade 9 final examination in October 2022. He loves mathematics, social studies and religious studies. He plans to study to be a male nurse when he graduates from St Odilia. He is now able to go and visit the family after the school administration talked to his family on the importance of educating an albino child.

Ever since CHALICE started helping the him, there has been an improvement in his academic work. The security provided by the construction of a wall fence is helping him not to go out of bounds and enables him to spend much of his time studying. Before the wall fence was constructed people used to sneak into the school under the cover of darkness and forcibly cut albino children’s hair which they would sell for witch doctor rituals. In other instances, people would wander on to the school grounds posing as friends or helpers and take advantage of these vulnerable children and steal their meagre possessions (mattresses, clothing) and also steal clippings of their hair.

Thanks to Inverness County Cares community (ICC) and Chalice for the financial support which has made the construction of the wall fence possible. It has changed the life of this young boy for he is now in a safe place and especially safe from ritual killings which are happening in Zambia particularly in the northern province. May the almighty God richly bless the people of CHALICE and ICC for protecting the life of children living with albinism.

Inverness County Cares (ICC) is a local charitable organization, founded in 2012 and based in Inverness County, NS, Canada. ICC works in partnership with Chalice.ca, a Canadian charity, based in Bedford, Nova Scotia. Chalice provides guidance and assistance to help us provide a better life for the children at the Kawambwa schools. The Kawambwa Project involves supporting two schools for albino and visually impaired students, in Northern Zambia. Inverness County Cares always welcomes new members. Individuals who wish to donate, can use the donate button on our website   https://invernesscountycares.com When using E-transfer, please include your mailing address for CRA tax receipts and a thank you message.   E-transfer address:  [email protected] or send a cheque to Inverness County Cares, 5414 Route 19, Judique, NS, Canada, B0E1P0. Taxation receipts provided for USA and Canada.

Beatrice’s Story

I am Beatrice Chipulu, an albino child aged 15 years. My family has three girls and four boys. All the boys are black and all the girls are albino and we girls all suffer from low vision. I am the second born in the family of Prosper and Grace. Both my parents are black but with a brownish skin. Albinism was inherited from both our parents. On our mother’s side, l was told, my great grandparents had one albino child and on my father’s side my aunt has three albino children and they live in the Copper Belt of Zambia.

My father is not educated and has never stepped his foot in the classroom, but he knows how to write his name. Despite his lack of classroom learning he is an expert in fishing and he has three nets and a boat. He was taught these skills by the fishermen he worked with. He is proud of his ability to provide for all his family.

My mother reached her secondary level grade nine and she then married my father. Last year their marriage was blessed in church at Christmas, it was a great celebration. She is good at knitting especially baby layettes and people come to buy these beautiful sets. She sometimes works selling my father’s fish. Our family home is at the shores of Lake Bangweulu the only lake in Zambia which doesn’t share with other countries. Bream is the species of fish found in this river.

My father and his family love us very much, especially our paternal grandmother Elizabeth who truly loves us totally. My mother’s family were not very welcoming to us three albino girls. Our mother Grace was happy to send us for extended amounts of time, to her mother in law’s home for meals, bathing and daily living. Our grandmother Elizabeth understood my mother’s attitude toward us for Grace preferred for her children to live with their paternal grandmother and left us there for months. Eventually our father joined us at our grandmother’s home.

Grandma Elizabeth taught us all domestic works, she taught us a love of flowers and vegetable gardening. She also encouraged us to associate with others despite the beliefs and myths perpetrated concerning albinos. The greatest gift she has given to us is praying the rosary. Grandma Elizabeth and my father are strong Catholics.

I entered St Mary’s Special School with the help of our parish catechist who once lived in Kawambwa and knew about the special school for the visually impaired and blind. He communicated this to my grandma Elizabeth. In 2015 when I was 8 and Abigail was 6 she took us to school. Abigail was in the pre-school for two years. In 2022, Abigail is in Grade 6, and am in Grade 8. When we left home to go to the St Mary’s School, our youngest sister Hellen Chipulu was very upset since she was separated from her sisters when we went to the Kawambwa school. At the age of two years seven months, she joined the Kawambwa school after my father talked to Sr Agnes and explained the situation.

The People in our village were challenged by our unusual confidence and activeness. It is common for albinos to be shunned and isolated from their community members because of the superstitions perpetrated by witchcraft and black magic. Grandma Elizabeth taught us that we were clever, loveable persons. With this confidence in our hearts, we became involved in community activities. We can dance all sorts of dances, sing and are very good story tellers. We have joined the Holy Childhood group at church, we read in church and share the word of God. Our interaction with our people has unveiled volume and volume of our being. Everyone is surprised as to our abilities. We are well treated and loved, because, “We have provided a mirror.”

My dream is to be social worker and fight for the rights of the disabled and the vulnerable. Parents and communities need to be educated concerning the cause of albinism and understand albinos are not supernatural or dangerous. I have accepted my condition of albinism and I encourage my young sister Abigail to accept herself as well.

l love St Mary’s School so much for it has enabled me to fulfill my dream, because, “The sky is the limit”.

Inverness County Cares (ICC) is a local charitable organization, founded in 2012 and based in Inverness County, NS, Canada. ICC works in partnership with Chalice.ca, a Canadian charity, based in Bedford, Nova Scotia. Chalice provides guidance and assistance to help us provide a better life for the children at the Kawambwa schools. The Kawambwa Project involves supporting two schools for albino and visually impaired students, in Northern Zambia. Inverness County Cares always welcomes new members. Individuals who wish to donate, can use the donate button on our website   https://invernesscountycares.com When using E-transfer, please include your mailing address for CRA tax receipts and a thank you message.   E-transfer address:  [email protected] or send a cheque to Inverness County Cares, 5414 Route 19, Judique, NS, Canada, B0E1P0. Taxation receipts provided for USA and Canada.

An Albinism Success Story

 

By: Christine Chisunka

I am Christine Chisunka, twenty-four and the last born in a family of three. My family was very poor and my mother died when I was three months making it hard for my father to afford a baby, so I was taken to my uncle’s house. He had a wife (Beatrice) and Moses, a seven-month boy. We were breast fed by my Auntie Beatrice as twins. My auntie’s family members didn’t accept me and were not in favor of having me in the family… but I needed to be fed. Beatrice explained to me later that, I was feeding from the left breast and Moses from the right. She thought Moses could not be fed from the same breast with an albino child. When she took us to the clinic for immunization a nurse (Joyce) noticed her because the two of us were crying after being injected. She talked to the nurse and she explained the cause of albinism and that it couldn’t be transferred to Moses through breast feeding. Her mind changed and she started adhering to the words of the nurse and we grew as twins.

As an albino I was always different. My upper eye lids are very weak, I have only a specific angle where light passes to reach the pupil. I am able to read and write with a pen but I am more comfortable with Braille. I had surgery on my eyelids twice. I like darkness because it does not strain my eyes.

When I grew up, I asked why I was different from Moses, my aunty again asked the nurse Joyce. She said, “In the world we are not all the same, we are different, but we are all God’s children and God loves us all”. I understood and she invited me to her home. I noticed her husband was very happy and I saw the difference in the treatment. I was given a warm welcome and played with her children, l never wanted to go home. The routine of visiting her started and the issue of starting school came up. I envied her children going to school. Life was better at Mr. and Mrs. Patrick Chansa’s.

My biological father is a bricklayer and he was hired to build a school in another district. He was providing all what was needed for my upkeep. He identified a suitable school, which was St Mary’s Special School in Kawambwa. He told the family, especially my second family of Mr. Patrick and I was taken to Kawambwa School. There I found a lot of albinos and I was comfortable and St Mary’s was my home from grade one to nine.

In grade six, my earlier question arose of why we are different in colour? I was sick and I was taken to the hospital, where I met a nurse who was friendly and I asked the same question! “Why is my colour different from others?” She explained to me about the genes and she encouraged me to like the subject science. I went to school happy to share with my fellow albinos.

An albino faces hardships at every stage of life. As previously explained, Auntie’s relatives are still offended by me but surprisingly, l and Moses are very close. Sometimes I get upset by their comments but at the same time I am consoled by the love I still get from other members of the family. I challenge my critics by the way I respond to issues of life and family issues. When one is sick in the family, during holidays I make sure that I nurse him or her. I am very hospitable, and visit members of my family without expecting any reward. This is the simple weapon that I use.

I have developed the inner fear since I never trusted anyone because of the witchcraft rituals surrounding my village. Whenever I am at my home village if I have to go out, I need to be in the company of others I trust. This inhibits my social interactions. “Prayer is key, and is key to my success”.

 

Albinism has also affected my biological father’s life. Since the death of my mother, my father has been single. When he brings home a woman he wants to marry and she learns that he has an albino child, she leaves my father alone. She will come up with an excuse maybe of visiting her family members, then that is the end of their marriage plans. It has happened often and he now stays with my elder sister Grace.

My attendance at St Mary’s was not easy, due to my father working at a distant place, I was not reporting to school on time or missing one academic term. It was worse when my uncle and aunt shifted after securing a job in the mines and Mr. and Mrs. Patrick were transferred to another district. I remained in the care of my elder brother Peter and my sister Grace. At school I became close to one of the caregiver’s daughters. She was a preschool teacher who I started staying with and am staying with her yet during holidays. She is my fourth foster parent. I am in the third and last year of my teacher training at Malcolm Moffat school, as a teacher of English and religious education.

One of the things that has helped me to cope with life is gardening. I like growing assorted vegetables, flowers and fruits. All the difficulties that I am going through ends in a garden, I can cry just there, then I go home and life continues. In my life I associate “Green” with creation and I like the colours green and white.

In 2017, when I completed my senior secondary level, I stayed in my village for two years, because my very ill father was diagnosed with diabetes and as his children, we needed to nurse him. While seated in the garden the idea of growing cabbage and visiting the agricultural department came to me. These vegetables (cabbages) sustained us and helped us to buy medicine for my father.

I am in the last year of my teacher training at St Mary’s Special School until April and in December 2022 I will be writing my last examination. I am very happy and I try my level best in all areas of life.

Inverness County Cares (ICC) is a local charitable organization, founded in 2012 and based in Inverness County, NS, Canada. ICC works in partnership with Chalice.ca, a Canadian charity, based in Bedford, Nova Scotia. Chalice works with us  to help us provide a better life for the children at the Kawambwa schools. The Kawambwa Project involves supporting two schools for albino and visually impaired students, in Northern Zambia. Inverness County Cares always welcomes new members. Individuals who wish to donate, can use the donate button on our website   https://invernesscountycares.com When using E-transfer, please include your mailing address for, CRA tax receipts and a thank you message.   E-transfer address:  [email protected] or send a cheque to Inverness County Cares, 5414 Route 19, Judique, NS, Canada, B0E1P0. Taxation receipts provided for USA and Canada.

 

Looking Back at 2021

 

Inverness County Cares (ICC) is a registered charity based in Inverness County, Nova Scotia, Canada. Our current project is with two schools in Northern Zambia, called the Kawambwa Project.

The two schools, St Mary in Kawambwa and St Odilia in Mporokosa are schools which provide an education in a safe environment for albino and blind students. Persons in East Africa who inherit the gene responsible for albinism are at a distinct disadvantage from birth. Age old superstitions concerning albinos are still a part of cultural beliefs. Initially at birth, when a black mother gives birth to a seemingly white child there is suspicion as to its true parentage. These children are frequently abandoned or live a secluded existence where they are a source of shame. They are neglected and isolated with the belief that they can pass on their condition to others. These children often lack social exposure and access to an education.

Albinism comes with several burdens for the children. Their sight is very poor or non-existent and deteriorates as they mature. The schools in the communities where these children live, lack the special interventions needed for visual impairment. Therefore, many of these children are developmentally delayed due to lack of stimulation. The sun is also a great source of danger to these people, for without melanin in their skin they have no protection from the sun’s ultra violet rays. Sun screen and protective clothing and hats are in short supply meaning albinos are almost certain to acquire cancerous lesions leading to very serious health consequences.

In addition to these disadvantages, they must deal with the dangers of the superstitions which place great value on the body parts of albino people. Unscrupulous individuals kidnap them in order to sell limbs and genitalia to witch doctors for fantastic prices. It is believed by many, that potions and charms made from albino body parts will bring great wealth, good luck and political success to people who purchase these spells, potions and charms from a witch doctor. The lucky ones who survive will often have their hands or feet amputated to satisfy the body parts trade.

Albinos of all ages live in constant fear of abduction and mutilation. The students at our sponsored schools are provided with an education and the confidence to navigate the world outside their school.

Inverness County Cares has pledged to contribute to the Kawambwa Project in Zambia for four years (2019-2023). Our yearly contributions are divided into two parts.

  • We have pledged $30,000 CAD per year to promote education, provide medical needs and help with nutrition, in partnership with Chalice Canada, an international aid organization based in Bedford, NS.
  • Funds collected above the $30,000 CAD will be used for high priority purposes determined by the school administration.

This past Calendar year ICC, with the support of generous donors, has supported three much needed extra projects.

Wall-fence: St. Mary school had a six-foot high wall which was extended upward another two feet. St. Odilia did not have a perimeter fence surrounding the school compound, making security a critical issue for Sister Agnes, the school administrator. After the abduction of a student from the sleeping quarters –later rescued unharmed — she made the building of the wall-fence a top-priority. She saw that students were terrified of intruders who could kidnap them or steal their personal belongings. The wall fence at St Odilia is nearing completion. The joy and security the wall fence brings is immeasurable.

28-seater bus: Students at the Kawambwa Project schools come from villages both near and distant from the school sites in Zambia. At the beginning of each school term the children must be picked up from their home and returned after the school term ends. The school had a small 12-seater van which required many trips to collect all the students. Inverness County Cares contributed a portion of the cost of a new 28-seater bus, which can make fewer trips while collecting more passengers. The bus is also used for field trips to educate the students and give them life experiences. Its delivery was greeted with joyous celebrations by students and staff.

Sisters’ convent roof: The Kawambwa Project schools are administered by the sisters of the Child Jesus, a Zambian order of sisters. The sisters live in a convent which was in urgent need of roof repair because of streams of water pouring into the Sisters’ residence every time it rained. ICC and Chalice have provided the sisters with the funds to repair the roof in the very near future.

Future extra project: ICC has received from Sister Agnes, the school administrator, a list of priority and urgent needs which the school staff has identified. It is to these areas any additional funds raised by ICC above $30,000 will be directed. The list includes tile repair, toiletries such as soap and sunscreen and special paper for producing Braille texts. 

ICC depends on the generosity of many kind supporters to purchase these supplies and complete this necessary maintenance work.

In addition, ICC members continue to work diligently to generate income through a variety of fundraising projects.  Refundable bottles and cans which are dropped off at our collection sites produce a reliable monthly income. Each November we give back to our own communities by donating that month’s revenues to the local food banks. Thanks to much help from ICC members and our local community, ICC grew a cash crop of 5,000 pounds of potatoes in the fall of 2021. ICC has hosted several popular community dinners, held a large pizza sale event for several years and entertained many with lively community concerts. This fall we planted a test plot of garlic to explore the possibility of selling this crop in the future.

Many, many thanks to our wonderful supporters.

Inverness County Cares (ICC) is a local charitable organization, founded in 2012 and based in Inverness County, NS, Canada. ICC works in partnership with Chalice.ca, a Canadian charity, based in Bedford, Nova Scotia. Chalice provides guidance and assistance to help us provide a better life for the children at the Kawambwa schools. The Kawambwa Project involves supporting two schools for albino and visually impaired students, in Northern Zambia. Inverness County Cares always welcomes new members. Individuals who wish to donate, can use the donate button on our website   https://invernesscountycares.com When using E-transfer, please include your mailing address for CRA tax receipts and a thank you message.   E-transfer address:  [email protected] or send a cheque to Inverness County Cares, 5414 Route 19, Judique, NS, Canada, B0E1P0. Taxation receipts provided for USA and Canada.

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